Blog by Louise Keevil, founding trustee and Acting CEO of Where I Want to Live

Chapter 1 of Good Lives: Building Change Together is about ‘A Home’.

And the importance of everyone having a choice about where they live and who they live with.

You may know that at Where I Want to Live we share this vision of a country where adults with learning disabilities have choice about where and how they live. 

We are taking steps towards this and the first thing we are doing is creating a toolkit that lots of people, who are aged between 18 and 35 years, can use.  

The toolkit starts by taking us back to basics and finding out what people actually want.

Yesterday we heard about how some disabled people are living in Ukraine.

Through the news reports we saw the institutions people are living in and the kinds of support some people get.

Like a lot of people, we were shocked and upset.

We want everyone to be valued, supported and belong in their community.

Chapter 4 of Good Lives is all about people with learning disabilities having the opportunity to love and be loved.

There has been lots of interest in the chapter and many organisations have shown their support.

You can watch Gary Bourlet, our Membership and Engagement Lead, speak about the chapter here

Alex talks about power.

Who has it, who is willing to share it, and who needs to take it.

And how this plays a part in making Good Lives a reality.

Alex talks particularly about Chapter 1: A home.

Last week Kings College London and the NHS published the LeDeR report for 2021-22.

You can read the report here

You can read the easy read version here

The annual LeDeR report gives the statistics and findings from NHS reviews following the deaths of people with a learning disability.

This year’s report shows that people with learning disabilities are dying on average 22 years younger than in the general population.

The government consultation and Call for Evidence for the Down Syndrome Act guidance has opened today, 19 July 2022.

It will close on 8 November 2022.

Read the Call for Evidence here

Read the Easy Read version here

Are you values driven and resourceful and want to join our small, dynamic team? 

We are recruiting for 2 part time roles –  both really important to us achieving the goals agreed with members and partners. 

Yesterday (22 June 2022) the new Bill of Rights had its first reading in the House of Commons. 

Learning Disability England members have been telling us how important these planned changes are to them.  

Guest blog by Alison Giraud-Saunders, Learning Disability England’s volunteer representative on the CHC Alliance and the NHS CHC national stakeholder group.

NHS Continuing Healthcare (NHS CHC for short) is funding from the NHS for a complete package of health and associated social care needs for an adult.

Voting for the Learning Disability England Representative Body (Rep Body) elections is now open.