All providers of education, health and social care and support should be adapting and actively meeting the ‘PMLD’ standards when supporting children and adults with ‘profound and multiple learning disabilities’.
Likewise, the Standards are a tool to be used by families, commissioners and regulators when assessing what ‘good’ support looks like.
As we step into 2021, Achieve Together discusses how one adult social care provider has helped shape, and use the Standards to continually improve support, and ensure consistent benchmarking of the vision and approaches.
Among other advances, this has led to people with profound and multiple learning disabilities being more involved in self and peer advocacy.
Watch this webinar to learn more about this journey and the people involved.
This webinar is for anyone who is interested in the PMLD standards or thinking about how we work to make sure we are all being more inclusive.
DNAR decisions: Experience led Human Rights analysis
Find out more about the human rights of people you’re supporting and DNARs
About this Event
During Coronavirus some disabled people and older people have been told doctors will not restart their heart if they become very unwell.
This is a Do Not Attempt Resuscitation Order called a DNAR.
The CQC is investigating this.
We ran an online workshop for staff to find out more about what human rights law says should happen when supporting people, especially when faced with difficult decisions and discussions like DNARs.
We asked staff to share their experiences of decisions about DNARs.
The workshop was for people working in health and social care, this includes in hospital, community and residential services and home, and those in local authorities such as social workers.
We will make a human rights report which you can use and will give the report to the CQC.
This session was hosted by the British Institute of Human Rights (BIHR).
The session was supported by Turning Point, BIHR and is open to LDE Members and the public.
COVID 19 has been hard for everyone but harder for people with learning disabilities from Black and Minority Ethnic communities.
It is very important to hear the voices of people learning disabilities from those communities because:
• Information from the Government show more deaths of people with learning disabilities during COVID.
• But there are more deaths of people from BAME communities than we should expect.
• Research on All deaths from COVID-19 of people with learning disabilities 20% were from BAME groups.
• What this tells us is that more people with learning disabilities from BAME groups are dying from COVID 19 .
The Foundation for People with Learning Disabilities, Learning Disability England and SeeAbility say that:
• This is not right People should not have higher risk because they are from BAME groups.
• We wanted to find out why people with learning disabilities from BAME groups are more at risk .
• We wanted to find out what we can do better to protect people from BAME groups.
Where do we go from here?
We invited lots of people to talk about this:
• People with learning disabilities to find out what is going wrong.
• How people with learning disabilities are being supported .
• What people who offer support (providers) are already doing to help protect people from BAME groups.
• Learn from these examples of good support and tell others about it.
• We want to tell the Government and people that make the rules about what is good support.
Programme:
The day was co -chaired by Lola Young, Baroness of Hornsey, Member of the House of Lords and human rights campaigner ans Scott Watkin, BEM, Head of Engagement at SeeAbility.
We focused on two mains areas:
Listen & Think –where the voices of people who are from Black Minority Ethnic groups are heard.
Change & Act – an opportunity to share good practice and show examples of how we can work together.
We want to work together with people with learning disabilities and organisations to make change happen and make sure that everyone is kept safe in future.
Come and hear about the amazing work self advocacy groups have been doing during the pandemic to Fill the Gaps left by other services.
The Research Team at the Open University introduce two new Reports: one on the role of Self advocacy during the pandemic; the other on the important part played by technology for people with learning disabilities during coronavirus.
Then you hear directly from the groups about their work to support members and others.
Really important messages for the way we need to organise and fund if we are to support people with learning disabilities better in emergencies like this.
This is an open session and will be of interest to anyone with a learning disability or who works with people with learning disabilities.
‘Everyday Matters’: working together with families
For many support workers, building positive relationships with families is an important part of the job. Getting it right can make a huge difference to people’s lives.
Camphill Village Trust has been working in partnership with Centre 404 and Learn With Us to co-produce new training programme and interactive resource, ‘Everyday Matters’.
‘Everyday Matters’ introduces some key skills that help staff communicate effectively with families to help build trust and work in partnership.
This webinar gives a taster of the training and the resources, and talks about how and why it was developed and how you can get involved.
This webinar is aimed at support workers and staff from provider organisations. It may also be of interest to people who employ their own Personal Assistance through Direct Payments.
This webinar is for Learning Disability England members only. You can become a member for as little at £12 a year, click here to find out more.
DNAR Decisions and Human Rights: Workshop
About this Event
During Coronavirus some disabled people and older people have been told doctors will not restart their heart if they become very unwell.
This is a Do Not Attempt Resuscitation Order called a DNAR.
The CQC is investigating this.
We are running an online workshop for disabled and older people to find out more about their human rights.
We will be asking people to share their experiences of decisions about DNARs.
The workshop is also for family and friends and community groups and advocates.
We will make a human rights report which you can use and will give the report to the CQC.
This session is being hosted by the British Institue of Human Rights.
This session is open to LDE Members and the public.
The webinar was led by Alex Ruck Keene, a Barrister from 39 Essex Chambers.
He covered the basic principles of the relevant laws like the Mental Capacity Act, implementing them in practice under the Coronavirus law and wider restrictions, and cleared up misunderstandings around current restrictions and what is possible or expected.The webinar was open to anyone with an interest in decision making, restrictions and the legislation.
Universal basic income webinar: Does the benefit system work for you?
